Executive Director

European Federation of Neurological Associations

Dr. Orla Galvin came to patient advocacy with a PhD in Medicine and background in drug discovery and design in both academic and industry environments.  Transitioning to advocacy work at the umbrella patient organisation Retina International, Orla led high impact, multi-stakeholder socio-economic studies, patient preference studies, and accessibility studies across the globe assessing both rare and common conditions.


Orla is an internationally invited speaker to both research and clinical learned societies (for example EURORDIS, EU Retina, ERN-EYE), patient organisations, and industries on topics such as:

  • Patient and public involvement in advocacy, research and policy,
  • Research in advocacy and policy/evidence-based advocacy,
  • Education in advocacy,
  • Generation of real-world data,
  • Patient reported outcomes
  • Health economics